Charity Bike Run September 26, 2009

What: Charity Bike Run

When: Saturday, September 26th, 2009
Where: Love Motorsports, 2081 S. Suncoast Blvd. Homosassa, Fl. 34448
Why: To help raise cash for the Ehlers-Danlos Network CARES Foundation research fund. Ehlers-Danlos Syndrome (EDS) is a connective tissue disorder that currently has no cure or treatment. The research fund helps scientists and doctors to explore treatment options to reduce the fragility of the vascular system of those who have the Vascular type of Ehlers-Danlos Syndrome. Additionally, researchers can better understand the genetic mechanism involved in all types of EDS and other connective tissue disorders.
For a map of the bike run and more information about the event, visit www.ehlersdanlosnetwork.org or call (813) 960-8412.
Registration begins at 8:30 a.m.
Kickstands up at 10:00 am; estimated return time is 3:00 p.m. (88 mile run).
Awards and prizes at end of run
Best of Show
1st, 2nd & 3rd place awards to winners. The “Best of Show” award will showcase the winner and his/her bike on the plaque.

Registration form is online at www.ehlersdanlosnetwork.org or register at event. Payment made at event:
$15 per bike & $5 extra per additional rider.
Family Fun! Something for everyone:
Alcohol-free
Food/drinks
Games/bounce house/waterslide
Live Music: Modern Mayhem 3-6 p.m.

Meet Lynn Sanders, founder of Ehlers-Danlos Network CARES; her National Spokesperson, Shannon Rose—“The Voice of Florida Wresting”; Wendy, Richard & London (event organizers); and other EDS families.

Official Website: http://ehlersdanlosnetwork.org